Friday, February 19, 2010

IT'S BEGUN

 

Today begins a new season in my daughter's life.  Today the reality of daily medication for MS is upon her.
Over the past two weeks she has slowly been receiving bits and pieces of all the medical equipment needed for giving herself daily injections of Copaxone.  This drug will hopefully slow the progression of MS in her body.  With each delivery of equipment came an added state of anxiousness.  Not a fan of needles, the new daily regiment is scary, tedious and painful.  Early this afternoon the home health care nurse arrived to give Bre and Kyle the necessary education on storage, preparation, administration and side affects of the drugs.  After three hours of conversation and questions Bre bravely stepped up to the plate and gave herself a shot in her right arm with her left hand!!!  The most difficult injection site to do on yourself.  BRAVO!!!!  What a trooper!  We are so proud of her.  She is my hero.  I so admire her courage through all this.  What you need to understand is that this 7-day a week regiment is a difficult one.  The shot must be given in a completely different area of her body each day.  The shot leaves a very painful welt along with hours of terrible stinging pain, leaving that whole area of her body weak.  This can last for up to two days.  Because she has to change the site each day, that leaves her whole body in a constant state of soreness.  It can take up to a year for these side affects to disappear.  Along with this comes constant fatigue.  Not an easy lifestyle to adjust to.  Especially when you have two little boys to raise.  Thankfully, she has an awesome husband who is 100 percent committed to help her through this.  Together, along with their faith in the Lord, I know she will be okay.  But it is still so hard to see your child have to suffer.  She is a reminder of how we must not take our good health for granted.
XOXO NANCY


2 comments:

Sandy Michelle said...

Your daughter is so brave. I can't even imagine the pain you feel for her! Hang in there!

Hugs!
Sandy

julie Haymaker thompson said...

OH Nancy My heart is breaking for her .I cannot understand this!!!! I Just do not understand cruel MS. Send he my deepest caring and that I am thinking of her. My problems just diminish to tiny dots in comparison to this !!! Thank you for sharing